Hello my friends! As always, hoping you are safe and well. xo
Without a doubt, cats would indeed push everything off the edge if the world was flat. It is a fact. Facts are important.
Fact is, each journey into Dementia is different. Fact, what one person is experiencing is not the same as another is experiencing EVEN THOUGH each person has the same diagnosis, been diagnosed for the same amount of time, by the same methods, perhaps even the same doctor, live either in the same city or across the world. This disease is unique.
For me, Early On Set Alzheimer’s (EOA) manifests, evolves and plays out similar but unlike any other human. Mine has a great element of pain and internal inflammation; inflammation that I keep under check with a natural anti-inflammatory. It is possible that the inflammation causes some of my pain, resulting in fibromialgia type symptoms, but more likely that it is my central nervous system CNS or my peripheral nervous system OR both as they are interconnected. My brain is doing that.
I know many people with Alzheimer’s, most of whom I have met through Dementia Alliance International (www.dementiaallianceinternational.org), D.A.I., others through my local chapter of the Alzheimer’s Society. Out of all the people I know who live with this illness, only 4 others suffer with pain; all of those people have been diagnosed for years longer than me.
Alzheimer’s will manifest into ( possibly) organ issues; visual issues and anomalies, eg: my vision is going all wonky, the optometrist may not see any abnormalities during my check up, my neurologist will see the differences in my brain; loss of speech patterns and auditory understanding capabilities, along with lots of word searching; short term memory incidences, mobility and so much more. It is a monster.
Inflammation has newly been added to defining research as a critical component of this disease. For me, it is a big part. The doctors do not know how it originated or why, however, as my brain atrophies, larger portions of fluid build up. This causes brain fogs.
To be clear, Alzheimer’s brain fogs ARE NOT the same as the media is portraying for society where people spend too much time at a computer, it is totally and completely different. My “fogs” incorporate my body, soul and mind. It is heavy, thick and unruly. It has nothing to do with any outside influence like computer fatigue; I also find it offensive this term is used within the millennial population, it is not comparable; take a break, get glasses, walk in nature, just my opinion.
Anyway, I do not have many of those fog days anymore, my anti-inflammatory relieves those effects; I am able to have clearer thoughts, chained ideas, good sleep ( when not in pain) and the ability to perform well above what is expected of me with the amount of damage I have in my brain. I am high functioning in comparison to what my brain imaging tells the doctors. I’m doing good.
My new pain meds have been so helpful, still looking into CBD oil.
FACT: Alzheimer’s is not catchy
FACT: 1 in 3 humans ( look to your left , look to your right , look in the mirror, one of you will be diagnosed) will be diagnosed with Alzheimer’s
FACT: Alzheimer’s is NOT always hereditary, there is no familial line in my family, I am the only one.
FACT: Cats push all things off the edge
Segue……
I finally went out. Well, to a store. To a place where other humans are. I wore an N95 mask and gloves, provided to me by my daughter.
Now that things are starting to open up, to see how we all do, I took the opportunity to pick up a few things, for my grand kids mostly. Freezies and Magic Magnetic Sand. I also picked up two of those squishy balls; one large and full of sparkles, the other, it fits in your hand and when you squeeze it, tiny balls inside protrude and squish out.
After getting them, my daughter and I ( of course) opened them in the car. After a squish and squeeze and a good belly laugh, we put them down and chatted. When I picked them up again, they stuck together, the big one and the small one. We laughed a bunch and slowly separated them, my daughter laughed and said, ” Oh wow! Its just like sitting too long on a seat in the summer and your legs stick to the chair!!!!” hahahahahaha!
I made a short video of the balls, but i can’t seem to post it here, could be the format. Join me on Facebook @ http://www.facebook.com/lylljt to see the video, you’ll see what I mean, its funny.
Next…….
I’m going to publish my next bloggy thing WITHOUT proof reading it. Remember a while back I wrote how I constantly have to go back and see what I’ve written, correct all the things and add in the words that don’t reach my keyboard from my head. Well, it should be interesting.
I type quite well, always have, but I seem to skip words now, only producing broken sentences when writing this bloggy thing. I want you to see what I experience.
I hope you will stay connected to see the next blog, it should be interesting.
Stay well my friends xo Jan xo Throw your love around!…. put it in the ground where the flowers grow!
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