It’s true; and that’s how I write my blogs.

I have many good intentions to write a blog everyday, but squirrel moments invade my space.

So many “things” invade my linear line of thinking. I start my days with intention to complete tasks, like writting a blog, and it just never works out that way. It’s kinda funny.

I rarely follow rules anymore. Nothing harmful, I just came to the conclusion that rules were made to keep us from feeling the things we need to, so I choose the rules I will follow.

I write my blog entries on my phone.  Ha! I like the app and feel more connected with my words as opposed to a true keyboard.

I have written a list that has good blog ideas in it but have never written about any of them. Once I connect FULLY with a thought or idea, I just write that.  I’m sure I’ll get to the list one day.

I’m feeling pretty good today, no pain.  Dr. Gave me some meds to manage it.  My daughter came to my last visit.  I’ve not felt connected to my GP lately,  her random off handed comments made me want to punch her in the face, I’m glad my daughter came this time .

During the visit, the Dr asked me to highlight on the chart of the human body ( front and back ) of where the pain I was experiencing was……. Apparently I highlighted all the meridians on the body.  She finally believed me, and with a few “Clear” words from my daughter ( love her) I might ad.  , I’ll keep on the meds and hope they work…..seems ok so far.  More on this if anything changes in the weeks to come.

Oh yeah, it’s my brain misfiring pain signals.

Anyway…..  I’ve always been kinda random so things are not too much different; but things go random quicker now.

Lately, my daughter pointed out changes in our conversations.  We’ll be talking and out of no where I’m on to another subject with absolutely no connective substance.  Like we are talking about , say, cooking chicken, then in the middle of it I am telling her my vacuum broke.

She laughed at me and said, ” Mumma, you only said all the things in your head to yourself, you gotta say them to me too!  I can’t follow you!  Hahahah!  “.   We made a pact to try to keep me focused, and saying all the things. Lol.  It was beautiful that she told me that.

Finding the beauty in this disease is not entirely easy, but there is beauty.  The simplicity that fills my life now is quite beautiful.

I am rarely dragged down by so many of the things others are…… The thoughts on all things are fleeting.  Except love.  That stays with me always. Never fleeting.

It’s clear to me that my life has changed since finding out exactly what’s going on in my brain.  But honestly, my life has changed in a way many or most of you, the readers, would not expect.

Successfully, perhaps oddly,  I have written two blogs simultaneously.  The content of the  next entry will follow on the heals of the thoughts written here in, providing a clear insight to my life and the life of many others living with this disease.

My connections through peer to peer conversations has allowed me understand with great attunement just how misunderstood this disease is, and I will share my thoughts and opinions on that in my next blog.

I, as well as so many others are going to work toward changing the misconceptions associated with this disease, absolutely for the greater good. It’s going to be quite an adventure, I hope you choose to follow.

My fleeting thoughts have purpose and significance, they are relevant. I just have to maintain the realization they need to be written down or they will disappear.

In the real world, it’s never what you think it is.

Piece by piece, story by story. 

“The dog days are over “.  Definition: a period of inactivity or sluggishness…..

It’s my story, here comes the twist.

Stay well my friends xo Jan
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